How do you handle the pain?
I can only remember that I was always having terrible pains, but thank god as time goes on the memory is less and less vivid. What I can recall is that the pain was constant, and very very severe. As young as I was, it was something I still had to deal with. I would get stomach cramps and double over and curl up in a ball and rock myself to sleep. My mother would give me some of my medicines and I am certain one of them had to be for the pain. How did I deal with it?I had no choice, I just did. Yes I cried, yes,...
Read MoreWhat is the toughest part about growing up sick?
Because I was so young when I first became ill, (age 8), I had to go through childhood and my teen years with lots and lots of problems. I was too weak to play for long periods of time and to even take gym class. It was a combination of being sick or always recovering from some kind of surgery. I was constantly made fun of and teased. When I became a teen, I always had to think of an excuse as to why I was not participating. I did manage to get through it, but it was tough. Young people go through enough with day...
Read MoreWhat This Book Means to Me
This book has been in my thoughts for so many years prior to my actually writing it, that it feels a bit weird to be just about there. I didn’t expect to have the urge to write my story until I was much older and “retired”. But I soon found myself in my early 40’s and not working after selling a business. I made a conscious decision to stay home while my son was in high school and there I was, one snowy day in February, not working and looking at my computer. “It must be time,” I told myself. When I...
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